Thursdays

Best ever cheesecake.

Best ever (first ever) hydrangea.

Best ever buggy built by middle baby.

Best ever sort of day even though it was very tough on my head to focus on what is important. Nearly three weeks back in and I am homesick for home and our version of normal.

Sundays

We are very bored this afternoon... But the great news is we are expecting company! My girlfriends are bringing wine and cheese. The weekends can be the hardest when I know the big boys are hanging out together, so the girls are a very welcome distraction.

I wont see the big ones until Tuesday, so I am trying not to think about time. It is such a cliche, I want to enjoy every second but then all on one thought, I just want the next 10 days over so we can go home again. At least we go home home, many of the family's stay at accommodation houses near the hospital and can be nearly 2 years without being home home for any extended period of time.

I miss my big boys, all three of them but am trying to be grateful that at least we have an end date of home time rather than never knowing when home day was which was what we dealt with for 10 months. There is really truly no place like home (your own bed, bathroom and backyard... Oh and having all of my little family under the one roof).

X

Fridays

What a beautiful way to start the day after a very very long night is the arrival of a beautiful boy for our beautiful friends.

Little one had an odd night but we are soon going back to our oncology ward so that will mean a sleep for him and a shower for me.

Wednesdays that go on forever

You never know how strong you are,

Until being strong is your only choice.

Bob Marley

Mondays

The big boys being spoilt by their gorgeous aunt...

Little one's afternoon viewing with his beloved Jimmy Giggle and Hoot.

Sleeping until 8am

Not sure where this one came from. But Tiny Buddha is always a source of joy for me x

 

And we are back...

Little one and Wags (note the very excellent sitting, very proud of that boy)

We have been back in since last Tuesday. He wasn't breathing very well when we came for our echo and to see Dr Brain. I was not overly worried about him at the time but his cough had definitely changed. Little one had a new line and some lung testing done on Thursday. So a few days in PICU due to the anaesthetic. He is back in theatre this coming Thursday for a few more things... Organising his little body all over again.

We are back in one of my favourite wards with some of may most favourite nurses ever, so I am happy (although already over being in).

My gorgeous piece of work of a mother is with little one tonight, so we get to spend some time at home with the big boys. The bigger little one gets the harder it is to leave him. We used to have every Sunday night at home and now I can't imagine that at all.

So let the hospital distraction start... My banking and bills will be up to date in a few days time, I will blog more and I will have time to think about what needs to be done around our shoebox house and leave To Do lists everywhere.

Two new family members

Rudy and Buck (even though you are girls) welcome to our family. Please grow to be fat podgy chickens that bless us with free range beauties each day. We promise to keep you well fed and watered and as you are already receiving, plenty of attention and cuddles.

24 new hours

Waking up this morning, I smile.

Twenty-four brand new hours are before me.

I vow to live fully in each moment and to look at all beings with eyes of compassion.

Thich Nhat Hanh