Friday, 31 May 2013

Friday photos

Big boy has been completely exhausted, middle one seems to be settling in to our routine (and going to music lessons on his own) and little one is nearly pain free but annoyed with his arm splints.

Monday, 27 May 2013

Cleft palate repair day

Little one had his cleft palate repaired (all of his soft palate and a little bit of the hard) last Thursday.  It feels like a milestone for us as this was the first thing discovered and then it will be our last big operation.  Our boy was gone for five hours while they worked on him and we went for a drive to get a few things done for the business.  My anxiety was bad the further we drove from the hospital but in general I thought I coped very well.  We only had two nights in PICU and were able to come home on the Saturday morning.
He is amazing to watch with his little arm splints on and they are not as bad as what we were expecting.  He can still use his arms and move around like normal.
His pain was bad yesterday afternoon and we sat on the couch together snuggling and watching TV.
His pain tolerance is amazing.  He smiles, gets on with things and know sounds like a baby lion cub.
We are one step closer to completely no more admissions.

Tuesday, 21 May 2013

It's been too long...

I am making a comeback... it has been too long between drinks.

We have been home since 6 January 2013 (only with one hospital admission for surgery within that time).  It is amazing, 'normal feeling' and lovely to finally have my three babies at home with us.  I now have three washing piles, three washing baskets and three beds to make.

Little one is coming along beautifully and has a funky vpap machine (variable positive airway pressure... similar to cpap/bipap) that I think I am contributing much of his growth too... not that I am going to admit it to our respiratory doctors just yet, as I was very adamant that I didn't want him to have it.  He is amazing and celebrated his second birthday last week - out of hospital this year!

So in love with our babes! And its so nice to be consistently at home in our own beds.